Φωτογραφικό Υλικό απο δραστηριότητες

Overall objectives of “EUPATI - European Patients’ Academy on Therapeutic Innovation”

Involving patients in research can hugely benefit the medicines development process: by bringing in their priorities and perspectives, patients can contribute to developing better treatments for them and others. Greater patient involvement in R&D will boost the efficacy and safety of new treatments and increase public support for medical research.

EUPATI aimed to trigger a major rethink in the way patients and the public understand the medicines development process and their own involvement therein. Armed with a deeper understanding, patient experts and advocates will be empowered to work effectively with the relevant authorities, healthcare professionals and industry to influence the medicines development process for the benefit of patients.

The main objectives of the consortium, led by the European Patients’ Forum, which includes patients’ organisations, academic groups, NGOs and pharmaceutical companies were:

• to develop and disseminate accessible, well-structured, comprehensive, scientifically reliable and user-friendly educational material for patients on the processes of medicines R&D, especially on end-to-end R&D processes, i.e. non-clinical R&D, clinical trials, personalised medicine, efficacy and safety assessment, risk benefit assessment, health economics, HTA and patient involvement in these processes

• to increase the capacity of “patient experts” and well-informed patients in patient organisations to be effective advocates and advisors in medicines research and development

• to empower patients to provide appropriate patient-relevant advice and insight to industry, academia, authorities and ethics committees